Triniti received her first dose of chemotherapy last night through IV while she slept. She has had some upset stomach this morning and it turned her urine red (it is a side effect of the type of chemo she is on). She also got her first intrathecal chemotherapy which is given through a lumbar puncture in the spine. She is put under anesthesia during the intrathecal chemo.
They also started her on steroids which has turned our sweet angel into something less than angelic. Mood swings are a side effect of the steroids so please pray for us that we remain patient with her because she is acting out of control right now.
The doctors have told us that we should be able to go home tomorrow but will have to come back to the outpatient clinic three times a week for chemotherapy treatments and check-ups. We will be going on Monday, Wednesday and Friday for now. A friend created a meal link for those of you who would like to help us out in this way. Right now we opened a schedule for anyone who would like to bring us a meal on our clinic days. Our lives are going to become very hectic with taking care of a sick child and we really appreciate all of your support. There is also a link that a friend set up if you are interested in making donations to help offset the expenses of Triniti's medical bills and Jon missing work. We are really appreciative of any help! Thank you all so much for keeping us in your thoughts and prayers.
This is a great idea. I have this site at the top of my blog bookmarks.
ReplyDeleteNevada...my daughter Emily is in Triniti's kindergarten class. She is always saying the most wonderful things about your little angel, I feel like I know her. We are definitely praying for Triniti and the family. I wanted to tell you to please feel free to reach out if you need help; if you need a babysitter or just someone to stop by so you can have a little time to yourself!
ReplyDeleteI heard a great commercial on the radio this morning about a program out of Children's National Medical Center called The Parents Letter Project. It is a great program that allows parents like you and Jon to share your stories and support from parents that may be in a similar situation. The web address is https://www.aparentsletter.com/.
Thinking of you,
Rebecca Boniface